LindsayHi friends,
I received an email about a clinical study for postural orthostatic tachycardia syndrome (POTS) patients from my sister who was recently diagnosed with POTS at the Mayo Clinic (story for another time). In the email, she had been invited to participate in a new remote clinical study evaluating the efficacy of an aerobic and strength training program on POTS. I thought it sounded interesting, but because I already exercise regularly, I do not qualify. I thought I would share with you all, if anyone is interested. 
Participants for the study must have a POTS diagnosis and cannot be regularly engaging in exercise each week. You are not required to stop medication during the program, but must maintain a consistent medication regimen for the duration of the study. The Mayo website did not provide much details about the study, so I emailed the principal investigator for more information. She was very kind and provided quite a bit more details, and sent a .pdf, which I have no idea how to upload to WordPress. I can email it to you, if you would like to take a look at it . Here’s what you need to know:
- Participants can be located anywhere in the U.S., however I believe participation is limited to U.S. Participants.
- Participants will need to travel to Scottsdale, Arizona on two separate occasions for the study – once before the study and once 3 months later. Travel expenses are not reimbursed. So, for my friends here in California, that might not be a big deal. If you’re located elsewhere, that could be an issue.
- If you’re located outside of the Scottsdale area, the training sessions are conducted via Zoom.
- The study will last 3 months, with a little flexibility to accommodate schedules.
- Participants will be assigned to one of two groups: 1) the exercise training group, or 2) the standard of care treatment group. Participants in the exercise training group will be asked to exercise at least 3 aerobic exercise sessions a week and receive eight supervised training sessions over the 3-months.
- If you have questions, you can contact the study coordinators listed on the clinical trials website.
The Mayo website also lists other current POTS studies, if you’re interested.
Hope this is helpful!
Smell ya later,
Linds