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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Category: Chronic Illness

Chronic Illness

this mthfr wants to discuss MTHFR…

I know, I know. I’m like the billionth person to make a pun between mthfr, the curse word, and the MTHFR genetic mutation. But as … Read More ›

Posted on May 13, 2019May 13, 2019
Chronic Illness

an update…

If you read my last post, you know I have been dealing with some neuropathic pain recently. After suspecting gabapentin may have contributed to the … Read More ›

Posted on May 7, 2019May 7, 2019
Chronic Illness

wildfire…

Thursday night, after my neurologist appointment, I started taking Gabapentin for the neuropathy. If you have followed this blog long enough, you know I overthink … Read More ›

Posted on April 15, 2019October 16, 2019
Chronic Illness

pots and small fiber neuropathy…

I have to extend a monstrous “thanks” to everyone who commented on my last post or emailed me. I had my neurology appointment today and … Read More ›

Posted on April 11, 2019April 12, 2019
Chronic Illness

nerves…

Last night, for the first time in a long time, on my insistence my husband went out without me. For years, as my postural orthostatic … Read More ›

Posted on April 7, 2019October 16, 2019
Chronic Illness, Exercise

a dysautonomiac continues exercising at home…

Disclaimer: Discuss all workout plans with your doctor prior to commencing. I can’t believe it has been almost two years since we discussed exercise here … Read More ›

Posted on March 18, 2019March 23, 2019
Chronic Illness

8 Things I wish I could go back and tell myself after diagnosis

Yesterday was my POTSaversary. Eight years ago, after an arduous tilt table test, I was diagnosed with postural orthostatic tachycardia syndrome (POTS). I knew little … Read More ›

Posted on February 17, 2019March 15, 2019
Chronic Illness

burn, baby, burn…

The good thing about having a chronic illness for a while, if one were forced to identify such a thing, is that part of it … Read More ›

Posted on February 9, 2019February 9, 2019
Chronic Illness

2019 resolutions…

Each January, I typically engage in the futile art of resolution-making, although I’m not sure what I make actually qualify as “resolutions”. It’s more like … Read More ›

Posted on January 8, 2019
Chronic Illness

2018: a year in review…

Friends. Oh, friends. It has been a year, am I right? A crazy, uprooting, ass-kicking, mind-fucking spellbound year. I never saw this year coming; was … Read More ›

Posted on December 31, 2018January 1, 2019

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