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MUSINGS OF A DYSAUTONOMIAC

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Category: Health

Chronic Illness, Conditions and Diseases, Health, Uncategorized

the road is life: tips for traveling with a chronic illness…

Update:  After publishing this post, my fellow POTS blogger at With a Side of Salt alerted me to her post about airplane travel with POTS. … Read More ›

Posted on June 9, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

chronic voyage…

I love traveling. I mean, I LOVE traveling. Ever since I was 15 and ordered my first Guinness beer from a bar in Ireland (and … Read More ›

Posted on May 27, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

Applying for Social Security Disability Benefits with Dysautonomia

*** Update: For dysautonomiacs who are filing for disability, my friend Stacy (see comments) has kindly offered the diagnostic code for dysautonomia: 337.9 (confirm this … Read More ›

Posted on May 5, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the symptom-cost scrutiny..

For the past few days I have been pretty dehydrated. From what I understand, dysautonomia and ME/CFS can cause problems with water retention, and we … Read More ›

Posted on April 27, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

emergency response…

Note: I started writing this post before the bombing in Boston on Monday, but debated whether to continue with the post in light of the … Read More ›

Posted on April 17, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the medication dilemma…

About a week ago, I stopped taking all my dysautonomia/ME/CFS medication.  I don’t exactly know why. One night before bed it was time to pop … Read More ›

Posted on March 30, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

brain fair…

Last Saturday, March 16th, was the American Academy of Neurology Annual Conference and Brain Fair.  This year it was located here in southern California, so … Read More ›

Posted on March 25, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

POTS 101 – Reblog

My fellow POTS blogger over at lethargicsmiles  provides a great description of POTS, what it is, and what it would feel like if you had it.  … Read More ›

Posted on March 3, 2013
Chronic Illness, Health, Uncategorized

chronically beautiful…

A few weeks ago my fellow blogger, Kathryn, posted about participating in the annual Beauty of a Woman (BoaW) BlogFest. I thought it sounded interesting, … Read More ›

Posted on February 21, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

another day, another medication…

Last week I had an appointment with my POTS doctor.  Many dysautonomiacs see a neurologist for help managing their condition, as dysautonomia is a dysfunction … Read More ›

Posted on February 14, 2013May 27, 2017

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