the finality of the fiasco…

Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday??   Cromolyn sodium oral concentrate! FIVE boxes of cromolyn sodium oral concentrate! 11.2 POUNDS of cromolyn sodium oral concentrate! That’s 5 KILOGRAMS OF CROMOLYN SODIUM ORAL CONCENTRATE!! Yes, I actually balanced five boxes of cromolyn on my bathroom […]

WEGO health awards…

Hey friends, Every year WEGO Health hosts its WEGO Health Awards, where patient advocates are nominated for different awards. This year, I have been nominated for a Best in Show: Blog award!! I don’t know what that means, but judging by that movie “Best in Show”, I think it means you all love my adorable […]

my cromolyn fiasco…

Fair warning: I am likely going to drop an expletive or two in this post, because I’m very annoyed. Current frustration level: F-bomb. For mast cell activation disorder (MCAD), I take a medication called cromolyn. Actually, if you want to get technical, its “cromolyn sodium oral concentrate”. It consists of these little tubes filled with […]

hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But that would be a lie. I have always had unfortunate hair. I was born with a thick black mop atop my head. As a little girl, it lightened up a […]

POTS/ Ivabradine study…

Hi all, I thought I would share a research study that was sent to me from ResearchMatch.org, the website for the organization that provides information on available research studies. Apparently, a cardiologist at the University of California, San Diego is conducting a study to determine the effects of ivabradine on people with postural orthostatic tachycardia […]

POTS in the news…

For those of you that follow the latest research on postural orthostatic tachycardia syndrome (POTS) regularly, this is probably old news. But for those of you that don’t… A recent study out of an Australian university has discovered the genetic suppression¬†responsible for POTS. For a while now, researchers have known that something with the norepinephrine […]

pre-existing…

Hello. My name is Lindsay, and I’m a former Republican. (Hi, Lindsay!) It may not surprise you to hear that, as someone who holds an undergraduate degree in political science and a law degree, I’m slightly turned on by¬†a good political debate. However, I have a longstanding rule: I don’t discuss politics on the internet. […]