Browsed by
Tag: caregiver

exit interview…

exit interview…

If you have followed this blog for a while, you know that my mom and I are study participants in a clinical trial for a new drug at the local research university here (you can read about it in my job interview post and here). My mom, who has a degenerative brain disease called Progressive Supranuclear Palsy (PSP), receives an experimental drug via infusion once a month. The university conducts regular tests to measure the efficacy of the drug and ensure she…

Read More Read More

the patient caregiver…

the patient caregiver…

I have mentioned this before, but being a patient who is also a caregiver is one of the more capricious dichotomies of my life. I certainly never expected to be a patient at this age, and I hoped for a couple of decades before I would become a caregiver. When I talk with other caregivers (who are usually my mom’s age, taking care of their parents who are my grandmother’s age),  they often tell me that caregiving is a gift…

Read More Read More

emotional intelligence 101…

emotional intelligence 101…

My mom was in town last week. You may remember from previous posts that my mom was diagnosed with a degenerative brain disease in October, 2015, and comes to stay with me every month to participate in an ongoing clinical trial for a new experimental drug. It’s astonishing to think that we have been doing this for well over a year now. When we first began the clinical trial, she could walk on her own, although very unstable. She could read,…

Read More Read More

mutual assured destruction…

mutual assured destruction…

Lately I enjoy listening to podcasts on my way to and from work. It all started with the “Serial” podcast, but after I finished seasons 1 and 2, I found I missed having intellectual stimulation during my commute. Upon the recommendation from a friend, I discovered a few podcasts that I have come to love. One such podcast discusses short history topics. Recently I listened to an episode on mutual assured destruction – or M.A.D. – that got me thinking. Mutual…

Read More Read More

job interview…

job interview…

Recently a friend and I were discussing job interviews and the ridiculous questions asked during such interviews, such as being asked to list your weaknesses.  Just once, I’d love to hear someone answer honestly, like “I’m incredibly lazy”, or “I don’t work well with others because I’m mean and I smell funny.” However, the common strategy is to present weaknesses that can be turned into strengths, such as “I’m too dedicated to my work”. This conversation sparked thoughts about weakness on…

Read More Read More

when patients become caregivers…

when patients become caregivers…

As you know from my previous post, I recently returned home after spending two weeks caring for my dad as he underwent spinal surgery.  I appreciate all the wonderful comments wishing my dad well and am happy to report that he is recovering nicely. My dad is a resilient man – at his two week appointment after having an entire jar of bone from his spine removed during surgery he asked the doctor when we can get back on his bicycle….

Read More Read More

when life gets in the way of illness…

when life gets in the way of illness…

Managing illness on a daily basis can be a challenge in and of itself. Lately I’ve hit a groove where, as long as I take the things I should and do the things I should, I am fully functional.  I still have symptoms constantly, but they don’t interfere with what I do on a daily basis. Of course, it bears mentioning that I don’t stand up for more than 10 minutes at a time, attend concerts, climb a bunch of…

Read More Read More

%d bloggers like this: