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a dysautonomiac exercises at home…

a dysautonomiac exercises at home…

Because I have dragged you all through numerous posts about exercise, like this and this, I kind of feel like you’re along for the entire journey, and I owe you status reports. You’re like my spotters, and I owe you a thick, goopy protein shake for keeping me motivated. So, drink up, friends. I have a Fitbit. I know…..who doesn’t, right? When I first quit the gym and  began working out at home, I set a daily “steps” goal. I…

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chronically ill holiday guide…

chronically ill holiday guide…

This is the third year I have posted this guide for people with chronic illnesses and their loved ones. I wanted to share it again this year, as I have made a few updates. The holidays are a wonderful time of togetherness, but can also be a time of stress and frustration as well. If you’re already dealing with the stress and frustration of a chronic illness, holidays have the potential to be miserable. Although I wouldn’t consider myself to…

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POTS, you rock my world…

POTS, you rock my world…

I’m like one of those cows. You know the cows that can anticipate when earthquakes are coming and they start behaving erratically when they sense an earthquake. I’m like one of those cows. At least that’s the only thing that explains all of the mooing lately. We had an earthquake last week. It was a 5.0 and was centered over 100 miles away from where I am.  Living on the west coast, earthquakes aren’t exactly a rare occurrence.  Standard earthquake…

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sick on top of sick…

sick on top of sick…

Don’t get your hopes up – this post is not about sick people…you know, getting “on top” of sick people. Sorry if you were kind of excited about that. I must be allergic to New Years’. You may remember from last year that I spent the first few days of 2013 with a migraine and vomiting. Unfortunately, this year isn’t off to a much better start.  I woke up on New Year’s Eve with whatever cold/flu/plague that’s currently going around….

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chronically ill holiday guide 2013…

chronically ill holiday guide 2013…

I posted this guide for people with chronic illnesses and their loved ones last year. I wanted to share it again this year, as I have made a few updates. I realize Hanukkah ended last week, so I apologize to my Jewish friends for not getting this up sooner. The holidays are a wonderful time of togetherness, but can also be a time of stress and frustration as well. If you’re already dealing with the stress and frustration of a…

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the heat is on…

the heat is on…

Holy Heatwave, Batman! We have been having an unprecedented heatwave here in southern California.  Certainly this time of year, temperatures are expected to rise – that’s no surprise. In fact, I don’t even think we have broken any records. The highs have been in the 90’s Fahrenheit (about 32-35 C for my international readers), lows in the 70’s. Having grown up in the desert, I’ve lived through much worse. Even since I’ve lived here, I have seen hotter days. Almost…

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MCAD, FMS and other random letters…

MCAD, FMS and other random letters…

I had an appointment with my cardiologist yesterday to discuss the bradycardia I had been experiencing. However, it takes about 6 weeks to get an appointment with this doctor, and by the time I was able to get in to see him, my heart rate had increased. As you may remember, I was having problems with a low pulse of high 30’s to low 40’s bpm.  For the past week, my HR has been up in the 60’s and 70’s….

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exercising like a(n elderly) boss…

exercising like a(n elderly) boss…

I’ve been tai chi’ing like a grandma. Wait…..let me back up. As you may remember from a post earlier this year, my goal for 2013 is to find an exercise program that works for my illnesses. Exercise intolerance is a primary symptom of both dysautonomia and ME/CFS. Even the simplest exercises are very difficult. Last summer I tried swimming therapy for exercise and really enjoyed it.  Because the hydrostatic pressure from the water promotes circulation, I actually feel fairly “normal”…

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too much of a good thing: bradycardia…

too much of a good thing: bradycardia…

It’s no secret I don’t like being on medication. I’m still skeptical about the long term effects of putting chemicals in my body. And while I appreciate not having a ridiculously high heart beat, I have to wonder about the aftermath of something that can tell my heart what to do. Only I should be able to do that. And maybe Chuck Norris. As you probably know, I’m on a beta blocker. Beta blockers, also known as beta-adrenergic blocking agents, block…

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things that are needlessly complicated by illness: the haircut

things that are needlessly complicated by illness: the haircut

An entire book could probably be written about simple things that are made much more difficult by dysautonomia and ME/CFS. Some I have mentioned before and are probably pretty obvious: Exercise. Showering. Standing. But others may not seem so obvious. I don’t want to be a traitor to my gender, but I hate getting my haircut. Hate.  Haircuts may seem fairly easy – you let someone massage your head, then sit in a chair for 30 minutes and chit chat…

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