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Tag: Disease

suicide survey…

suicide survey…

Standing Up to POTS (an organization for which I serve on the Board) is partnering with counselors and suicide prevention specialists to tackle the issue of suicide risk in chronically ill populations.  We need patients with invisible illnesses (any, not just POTS) to complete a survey so we can develop better screening tools to identify the risk of suicide in patients with chronic illnesses. The survey is completely anonymous and will not collect any personal information from you. At this…

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stop comparing every illness to cancer…

stop comparing every illness to cancer…

I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I received my chronic illness diagnosis still ranks among the worst days of my life. It solidified my worst fear during the years of testing and misdiagnoses and uncertainty: that my life would never be the same. Friends and family rushed in with loving expressions and compassionate words. And, inevitably, as every newly diagnosed chronic illness…

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invisible illness week: JUST ONE life…

invisible illness week: JUST ONE life…

Every year I try to write a post for Invisible Illness Week and – guess what week it is??!  To learn more about Invisible Illness Week, visit this website and be sure to check out some of the other blog posts listed from some amazing invisible illness sufferers. In past years I completed the “30 Things About My Illness” Questionnaire for Invisible Illness week, but this year I’ve decided to write about the theme for this year – JUST ONE….

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chronically ill holiday guide 2013…

chronically ill holiday guide 2013…

I posted this guide for people with chronic illnesses and their loved ones last year. I wanted to share it again this year, as I have made a few updates. I realize Hanukkah ended last week, so I apologize to my Jewish friends for not getting this up sooner. The holidays are a wonderful time of togetherness, but can also be a time of stress and frustration as well. If you’re already dealing with the stress and frustration of a…

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