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MUSINGS OF A DYSAUTONOMIAC

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Tag: invisible illness

Chronic Illness

2019 resolutions…

Each January, I typically engage in the futile art of resolution-making, although I’m not sure what I make actually qualify as “resolutions”. It’s more like … Read More ›

Posted on January 8, 2019
Chronic Illness

unseen…

Earlier this year, I wrote about a family reunion trip to Lake Tahoe and how I had to miss out on most of the activities … Read More ›

Posted on December 23, 2018December 23, 2018
Chronic Illness

why the chronically ill make good friends…

I have never been great at making friends. When I was younger, part of that stemmed from self-doubt, because I didn’t have a lot of … Read More ›

Posted on April 21, 2018September 1, 2018
Chronic Illness

getting a tattoo with a chronic illness…

Like it does with most things in life, having a chronic illness can complicate the process of getting a tattoo.  I have put together a … Read More ›

Posted on December 6, 2017December 8, 2017
Chronic Illness

inked…

A couple weeks ago, I may have had a mid-life crisis and had this done: It is my first tattoo, and I am entirely too … Read More ›

Posted on November 22, 2017November 22, 2017
Chronic Illness, Demo

invisible…

Today marks the end of Invisible Illness Week and, as you may remember, October is Dysautonomia Awareness month. In the past I have helped organize … Read More ›

Posted on October 22, 2017November 22, 2017
caregiver, Chronic Illness

the patient caregiver…

I have mentioned this before, but being a patient who is also a caregiver is one of the more capricious dichotomies of my life. I … Read More ›

Posted on May 4, 2017May 13, 2017
Chronic Illness

suicide survey…

Standing Up to POTS (an organization for which I serve on the Board) is partnering with counselors and suicide prevention specialists to tackle the issue … Read More ›

Posted on February 13, 2017
Chronic Illness, Conditions and Diseases, Health

stop comparing every illness to cancer…

I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I … Read More ›

Posted on January 25, 2017February 13, 2017
Chronic Illness, Conditions and Diseases, Health

administrative updates…

Hi friends, I’d like to tell you that the title for this post is some deep metaphor for the wisdom I’m about to bestow, but … Read More ›

Posted on January 23, 2017January 23, 2017

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