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Tag: ME/CFS

unrest…

unrest…

In this post, I’m actually going to talk about an illness I don’t have: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Prior to my postural orthostatic tachycardia syndrome (POTS) diagnosis, I was diagnosed with ME/CFS because many of my symptoms were the same: extreme fatigue, muscle pain, post-exertional malaise (worsening of symptoms after activity), sleep difficulties, autonomic symptoms, headaches, sensitivity to light, etc. When you compare the symptoms of POTS and ME/CFS, they’re actually very similar. However, POTS can be diagnosed with…

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MCAD, FMS and other random letters…

MCAD, FMS and other random letters…

I had an appointment with my cardiologist yesterday to discuss the bradycardia I had been experiencing. However, it takes about 6 weeks to get an appointment with this doctor, and by the time I was able to get in to see him, my heart rate had increased. As you may remember, I was having problems with a low pulse of high 30’s to low 40’s bpm.  For the past week, my HR has been up in the 60’s and 70’s….

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exercising like a(n elderly) boss…

exercising like a(n elderly) boss…

I’ve been tai chi’ing like a grandma. Wait…..let me back up. As you may remember from a post earlier this year, my goal for 2013 is to find an exercise program that works for my illnesses. Exercise intolerance is a primary symptom of both dysautonomia and ME/CFS. Even the simplest exercises are very difficult. Last summer I tried swimming therapy for exercise and really enjoyed it.  Because the hydrostatic pressure from the water promotes circulation, I actually feel fairly “normal”…

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emergency response…

emergency response…

Note: I started writing this post before the bombing in Boston on Monday, but debated whether to continue with the post in light of the tragedy. The “emergency” I discuss in the post doesn’t compare to what many experienced Monday at the Marathon, and I don’t in any way intend to compare the two. Yet, responding to any emergency situation, big or small, may be a concern for the chronically ill, so I ultimately decided to continue with the post….

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