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MUSINGS OF A DYSAUTONOMIAC

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Tag: myalgic encephalomyelitis

Chronic Illness, Conditions and Diseases, Health, Uncategorized

the heat is on…

Holy Heatwave, Batman! We have been having an unprecedented heatwave here in southern California.  Certainly this time of year, temperatures are expected to rise – … Read More ›

Posted on September 8, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

MCAD, FMS and other random letters…

I had an appointment with my cardiologist yesterday to discuss the bradycardia I had been experiencing. However, it takes about 6 weeks to get an … Read More ›

Posted on August 22, 2013
Chronic Illness, Conditions and Diseases, Uncategorized

too much of a good thing: bradycardia…

It’s no secret I don’t like being on medication. I’m still skeptical about the long term effects of putting chemicals in my body. And while … Read More ›

Posted on July 24, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

things that are needlessly complicated by illness: the haircut

An entire book could probably be written about simple things that are made much more difficult by dysautonomia and ME/CFS. Some I have mentioned before … Read More ›

Posted on July 11, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the joys of being a woman, part ii…

Gentlemen, this is another one of those posts you may want to skip. Although, if you choose to continue, I have included some special treats … Read More ›

Posted on June 29, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

chronic voyage…

I love traveling. I mean, I LOVE traveling. Ever since I was 15 and ordered my first Guinness beer from a bar in Ireland (and … Read More ›

Posted on May 27, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

Applying for Social Security Disability Benefits with Dysautonomia

*** Update: For dysautonomiacs who are filing for disability, my friend Stacy (see comments) has kindly offered the diagnostic code for dysautonomia: 337.9 (confirm this … Read More ›

Posted on May 5, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the symptom-cost scrutiny..

For the past few days I have been pretty dehydrated. From what I understand, dysautonomia and ME/CFS can cause problems with water retention, and we … Read More ›

Posted on April 27, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the medication dilemma…

About a week ago, I stopped taking all my dysautonomia/ME/CFS medication.  I don’t exactly know why. One night before bed it was time to pop … Read More ›

Posted on March 30, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

another day, another medication…

Last week I had an appointment with my POTS doctor.  Many dysautonomiacs see a neurologist for help managing their condition, as dysautonomia is a dysfunction … Read More ›

Posted on February 14, 2013May 27, 2017

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