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MUSINGS OF A DYSAUTONOMIAC

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Tag: Postural orthostatic tachycardia syndrome

Chronic Illness, Conditions and Diseases, Health, Uncategorized

things that are needlessly complicated by illness: the haircut

An entire book could probably be written about simple things that are made much more difficult by dysautonomia and ME/CFS. Some I have mentioned before … Read More ›

Posted on July 11, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

belated blogiversary…

I just realized that Musings of a Dysautonomiac celebrated its one year anniversary! June 21st, 2012 I posted my very first post. I started this … Read More ›

Posted on July 4, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the joys of being a woman, part ii…

Gentlemen, this is another one of those posts you may want to skip. Although, if you choose to continue, I have included some special treats … Read More ›

Posted on June 29, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the road is life: tips for traveling with a chronic illness…

Update:  After publishing this post, my fellow POTS blogger at With a Side of Salt alerted me to her post about airplane travel with POTS. … Read More ›

Posted on June 9, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

chronic voyage…

I love traveling. I mean, I LOVE traveling. Ever since I was 15 and ordered my first Guinness beer from a bar in Ireland (and … Read More ›

Posted on May 27, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

Applying for Social Security Disability Benefits with Dysautonomia

*** Update: For dysautonomiacs who are filing for disability, my friend Stacy (see comments) has kindly offered the diagnostic code for dysautonomia: 337.9 (confirm this … Read More ›

Posted on May 5, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the symptom-cost scrutiny..

For the past few days I have been pretty dehydrated. From what I understand, dysautonomia and ME/CFS can cause problems with water retention, and we … Read More ›

Posted on April 27, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

emergency response…

Note: I started writing this post before the bombing in Boston on Monday, but debated whether to continue with the post in light of the … Read More ›

Posted on April 17, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

the medication dilemma…

About a week ago, I stopped taking all my dysautonomia/ME/CFS medication.  I don’t exactly know why. One night before bed it was time to pop … Read More ›

Posted on March 30, 2013
Chronic Illness, Conditions and Diseases, Health, Uncategorized

brain fair…

Last Saturday, March 16th, was the American Academy of Neurology Annual Conference and Brain Fair.  This year it was located here in southern California, so … Read More ›

Posted on March 25, 2013

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