the perfect storm…

As I mentioned on the More About Dysautonomia page, POTS includes a wide variety of symptoms, many of which at first glance seem unrelated.  I’ve probably experienced all the symptoms at one time or another, but like most POTSies, I have a few symptoms that are most prominent that come and go throughout the day. However, every now and then, they all come together and create the perfect storm.

I had a headache for the majority of the day yesterday, and by evening, it had reached full blown migraine status. If you have never had a migraine, you are very, very lucky. I managed to fall asleep at my regular bed time, but woke up a few hours later. I have only broken fingers and toes and have never given birth, so perhaps my sense of pain is a little skewed, but that was the worst pain I have ever experienced. My head throbbed all over and I was extremely nauseous. I took my medication and went and laid on the couch to avoid disturbing the BF. I tried some of the meditation techniques I have been studying, but I’m still an amateur and have difficulty focusing through the pain.  After about half an hour, the nausea became too much and I went in the bathroom and vomited. A lot. For a while.

Once I finished and drank about a gallon of mouthwash, I tried to walk back to the bedroom. At this point, my face was tingling and I was very dizzy. After taking a few steps but stumbling into the walls like a drunkard, I was forced to get down on my hands and knees and crawl to the bed.

Because I became sick to my stomach shortly after taking pills, I likely vomited up the medication before my body had time to absorb it. One of the pills helps control my heart, and without it, my blood pressure began to plummet and my heart rate began to soar. With my my heart rate in the 150s, just laying down, I tend to get out of breath as if I were running. I felt feverish and was sweating, but my hands and feet were freezing. My muscles ached and I began to shiver uncontrollably. I had to cover my face with the pillow because even the small LED light coming off the cable box felt like it was piercing my skull and exacerbated my migraine. The perfect storm.

I lay that way for a hour or two, unable to fall asleep, but unable to get up and do anything. Eventually I dozed off and continued to wake up in pain periodically throughout the rest of the night.

Nights such as this are not an everyday occurrence, but they are an unfortunate part of my illness, one that occasionally complicates my life.  Fortunately, there are memories of other days to remind me that all pain is temporary.

Pain is temporary. It may last a minute, or an hour, or a day, or a year, but eventually it will subside and something else will take its place. If I quit, however, it lasts forever.
– Lance Armstrong

Stay tuned.
– L
Enhanced by Zemanta

7 Replies to “the perfect storm…

  1. My heart aches for you Junkey Monkey but it is oddly comforting to know what you’re coping with. I shall stay tuned.

  2. Just came across your site when googling POTS diagrams. Have you heard of the POTS Treatment Program in Dallas?

  3. Thanks, Christie!

    Mimi, thank you for commenting! I’ve heard of Dr. Levine’s program which I believe is somewhere in Texas, but I’m not sure if that’s the same thing you’re referring to.

  4. It’s very interesting to read your blog, having just been diagnosed with POTS myself. I’ve never had a “perfect (perhaps “imperfect” would be the more apt word?! :/ ) storm” quite as bad as the one you wrote about here, though I have had many of those same symptoms, and in varying degrees from day to day — though I have not been able to identify a “trigger” or rhyme or reason for the variations. I’ve got an appointment coming up, and will decide on which specialist to see next. I will check back in on your blog from time to time. Thanks for sharing!

  5. Hi! Just came across your blog and really appreciate your insight. My teenage daughter, Mik, suffers from a very unpredictable and debilitating form of Dysautonomia. She had extreme migraines as well, but we were able to remedy 99% of these by having her ASD fixed (we did not realize she had one.) Her cardiologist is leading this surgery as he sees a connection with ASD and severe migraines.

    You can see the news link about my daughter’s surgery below. (BTW, they really didn’t mention her Dysautonomia in this piece and, yes, her migraines are better, but her Dysautonomia symptoms are not. Nor, were they promised to be. We were just thankful to get rid of at least one symptom. Now, she has a migraine maybe 2 times per month. Much better than 1 all day every day.

    If you continue to have a migraine issues, you might look into this. Most doctors have not heard of this surgery helping migraines.

    Wishing you the best!

    News Link about the surgery:

    http://www.hiddenheartsalliance.org/inthenews.htm

    1. Hello, thank you so much for your comment and for visiting my blog! I’m sorry to hear about Mik’s dysautonomia – hope she is doing okay. Thanks for sharing the link – I had never heard of ASD – very interesting!

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.