dysautonomia awareness month…

October is Dysautonomia Awareness Month! As you probably know by now, dysautonomia means a dysfunction of your autonomic nervous system (ANS). The ANS controls all those automatic body functions you don’t think about, like heart rate, blood pressure, temperature regulation, respiration, and digestion. Postural orthostatic tachycardia syndrome (POTS) is a form of dysautonomia where a person’s heart rate increases at least 30 beats per minute when standing.

Most people with POTS have other symptoms of autonomic dysfunction, too, like low or high BP, shortness of breath, digestive difficulties, or difficulty regulating body temperature. The heart rate variation is the easiest to see.

graphic about symptoms of POTS

My fellow blogger, Nicole, over at CoolNCreative has put together a great post about Five Fast Facts About Dysautonomia that you should check out for more information.

There are often events around the world to celebrate and bring more awareness to Dysautonomia and POTS. If you happen to be in California, I have heard of two events thus far: one in Fresno, and one in San Diego this Saturday, October 6th, 2018. If you know of any other events around the country (or world!) post below so others nearby can join!

Happy Dysautonomia Awareness month!

graphic about sleep disturbances in POTS

Smell ya later.
– Linds

5 Replies to “dysautonomia awareness month…

  1. I am happy for you to share my blog posts on Dysautonomia, here is the link to another one on how you can raise awareness coolncreative.wordpress.com/2017/10/24/how-you-can-support-people-living-with-dysautonomia-and-help-raise-awareness/ as long as you acknowledge me whcih I can see you have done. Thank you.
    Maybe don’t wish us Happy Awareness Month because it’s not happy. If it was happy we’d be celebrating living with the condition or some sort of magical miracle treatment or a cure. Unfortunately I live in Australia where there is not charity like Dysautonomia and no face to face support groups and nobody knows what it is so there are no events for it to be involved in.

    1. It’s not happy living with it, you’re right. I have been diagnosed for almost 10 years, and been living with it for much longer, and if there’s one thing I have learned, it’s how sad and isolating this condition is. I say Happy Dysautonomia Awareness month, because I am happy there is a month dedicated to raising awareness about what a large impact dysautonomia has on our lives. Helps to make it less isolating.

  2. A brilliant post to raise awareness of a condition that I think is still largely unknown to a lot of people, so awareness days like this are vital. I don’t know of any events in the UK near me but it’s great there are two over there that you know of! Great post, Linds 🙂
    Caz xx

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