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MUSINGS OF A DYSAUTONOMIAC

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Category: Chronic Illness

Medication, POTS

POTS/ivabradine study, take two…

[Update: Even though below I said I’d rather lick my dog’s feet than take ivabradine again, I called the researcher and volunteered to participate. She … Read More ›

Posted on January 23, 2018January 25, 2018
Chronic Illness

my ivabradine experience…

After trialing two new medications: midodrine and ivabradine/Corlanor, I intended to start by discussing the midodrine experience, as I tested it first. However, I just … Read More ›

Posted on January 19, 2018
Chronic Illness

resolutions 2018…

You guys… GUESS WHAT I GOT??!! It’s sleek and fast and sexy and I want to have its babies. Thank god it’s finally here. It was … Read More ›

Posted on January 11, 2018January 12, 2018
Chronic Illness

unrest on pbs…

You may remember that I previously wrote about a recently released documentary, Unrest, which portrays how myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome … Read More ›

Posted on January 7, 2018January 9, 2018
Chronic Illness

an ode to my dog…

Hey friends. Well, my computer crapped out on me. I’m hoping to get a new one soon, but….expensive holidays and all, so it may be … Read More ›

Posted on December 20, 2017December 20, 2017
Chronic Illness

chronically ill holiday guide…

I post this every year, so if you gave it a glance last year, you’re allowed to skip this year. Although, if you know anyone … Read More ›

Posted on December 11, 2017December 16, 2017
Chronic Illness

getting a tattoo with a chronic illness…

Like it does with most things in life, having a chronic illness can complicate the process of getting a tattoo.  I have put together a … Read More ›

Posted on December 6, 2017December 8, 2017
Chronic Illness

Giving Tuesday…

I hope you all had a wonderful Thanksgiving (or weekend, for all the international readers). I’m so thankful for you, friends! As you may know, … Read More ›

Posted on November 27, 2017November 27, 2017
Chronic Illness

inked…

A couple weeks ago, I may have had a mid-life crisis and had this done: It is my first tattoo, and I am entirely too … Read More ›

Posted on November 22, 2017November 22, 2017
Unrest film poster
Chronic Illness

unrest…

In this post, I’m actually going to talk about an illness I don’t have: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Prior to my postural orthostatic tachycardia … Read More ›

Posted on November 7, 2017November 22, 2017

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