options…

I have been on a beta blocker since I was diagnosed with postural orthostatic tachycardia syndrome (POTS) in 2011. Initially, I was prescribed 25mg of atenolol once per day. Beta blockers work by blocking norepinephrine and epinephrine (adrenaline) from binding to beta receptors on nerves, which reduces heart rate and blood pressure. Thus, beta blockers […]

acupuncture and other ‘alternatives’…

chinese herbs

Just this past week, I received acupuncture, started taking Chinese medicine, and took a yoga class. You guys, I am holistic as f*ck. Acupuncture This was actually my second appointment with the acupuncturist. I first went to see him for a couple of reasons, primarily back/neck pain and hormonal imbalance (yes, still – my hormones […]

a notice for my soCal friends…

A notice was posted at my cardiologist’s office that Scripps La Jolla offers Yoga for Dysautonomia every Wednesday evening at 6:15p.m. at the Schaetzel Center Building at the Scripps Memorial Hospital campus. I think the address for the Schaetzel Center is 9890 Genesee Avenue, La Jolla, CA 92037 (please double check that before you go). […]

hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But that would be a lie. I have always had unfortunate hair. I was born with a thick black mop atop my head. As a little girl, it lightened up a […]

POTS/ Ivabradine study…

Hi all, I thought I would share a research study that was sent to me from ResearchMatch.org, the website for the organization that provides information on available research studies. Apparently, a cardiologist at the University of California, San Diego is conducting a study to determine the effects of ivabradine on people with postural orthostatic tachycardia […]

POTS in the news…

For those of you that follow the latest research on postural orthostatic tachycardia syndrome (POTS) regularly, this is probably old news. But for those of you that don’t… A recent study out of an Australian university has discovered the genetic suppressionĀ responsible for POTS. For a while now, researchers have known that something with the norepinephrine […]

conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as the recordings of the speakers were available. The videos are now up, organized by speaker and topic, at the Children’s Hospital of Orange County website here. Feel free to share […]