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MUSINGS OF A DYSAUTONOMIAC

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Category: Chronic Illness

Chronic Illness

reflections on 2021…

Hi friends. It has been a minute. I’m not great at keeping up with the blog lately, mostly because I don’t have a lot to … Read More ›

Posted on January 1, 2022
Chronic Illness

the problem of pain…

I will admit that I am bad about identifying when my posts have content that might be triggering for some people. I will try to be … Read More ›

Posted on August 5, 2021August 3, 2023
Chronic Illness

POTS podcast…

Hey friends, I haven’t been posting much recently because I have been super busy helping with a podcast! As you may remember, I am on … Read More ›

Posted on July 25, 2021
Chronic Illness

i’ll take “inaccurate answers about POTS” for $600, Alex!

* I loved Alex Trebek and was very saddened by his passing. I mean no disrespect by including his name in the title of this … Read More ›

Posted on June 24, 2021June 27, 2021
Chronic Illness

POTS clinical study…

Hi friends, I received an email about a clinical study for postural orthostatic tachycardia syndrome (POTS) patients from my sister who was recently diagnosed with … Read More ›

Posted on May 29, 2021
Chronic Illness

vaccination #2…

What has two thumbs and is fully immunized? THIS GIRL. It has  been over two weeks since my second Pfizer COVID-19 vaccine. I now have … Read More ›

Posted on April 27, 2021
Chronic Illness

vaccination #1…

Guess what I did? If you have read my previous post about the COVID vaccine, you know I wasn’t super excited about getting the vaccine. … Read More ›

Posted on March 23, 2021March 24, 2021
Chronic Illness

ivabradine study results…

Edit: After I published this post, I discovered a study on the effects of ivabradine on POTS by Dr. Grubb (a well known POTS physician) … Read More ›

Posted on March 6, 2021March 8, 2021
Chronic Illness

reflections on a decade…

This week is my decade POTSaversary. Ten years ago from Tuesday (2/16), after undergoing a brutal tilt table test, I was finally diagnosed with POTS. … Read More ›

Posted on February 18, 2021
Chronic Illness

longhaul…

In the near decade since I was diagnosed (the ten year anniversary is in just a couple weeks), I have never heard POTS mentioned on … Read More ›

Posted on February 6, 2021

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