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MUSINGS OF A DYSAUTONOMIAC

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Category: POTS

Chronic Illness, Conditions and Diseases, Dysautonomia, POTS

hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But … Read More ›

Posted on July 9, 2017September 1, 2018
Chronic Illness, POTS

POTS/ Ivabradine study…

Hi all, I thought I would share a research study that was sent to me from ResearchMatch.org, the website for the organization that provides information … Read More ›

Posted on June 23, 2017June 24, 2017
Chronic Illness, Dysautonomia, POTS

POTS in the news…

For those of you that follow the latest research on postural orthostatic tachycardia syndrome (POTS) regularly, this is probably old news. But for those of … Read More ›

Posted on May 25, 2017May 26, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS

happy POTSiversary to me…

I’m going to tell you a story about the woman in this photo.     This was taken a little over six years ago. She … Read More ›

Posted on February 22, 2017
Conditions and Diseases, MCAD, POTS, Uncategorized

conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as … Read More ›

Posted on January 10, 2017January 28, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, MCAD, POTS, Uncategorized

conference recap…

I was really hoping to get this out to you all before the end of 2016, but I’m 23 hours late. I hope you’ll all … Read More ›

Posted on January 1, 2017January 30, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS, Uncategorized

(wo)man’s best friend…

One year ago today, my life changed. This handsome fella came into my life: Today is Fletcher’s one year adoption anniversary. I first came across … Read More ›

Posted on December 20, 2016
Chronic Illness, Medication, POTS, Uncategorized

when good doctors happen to bad people…

I’d like to think that I’m not actually a bad person, but I’m continuing a theme. After my previous “when bad doctors happen to good … Read More ›

Posted on October 17, 2016
Chronic Illness, MCAD, POTS, Uncategorized

#ThisIsChronicIllness…

Today marks the first day of Dysautonomia Awareness month, and tomorrow is the last day of Invisible Illness Awareness week, so I like to think … Read More ›

Posted on October 1, 2016
Chronic Illness, Exercise, POTS, Uncategorized

5k walk/run in springfield, oh…

Friends (I call everyone “friend” – if you’re reading this post, we’re friends. Even if it’s not mutual. Deal with it.), if you happen to … Read More ›

Posted on September 22, 2016

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