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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Category: POTS

Chronic Illness, Conditions and Diseases, Doctor Visit, Dysautonomia, Health, POTS, Uncategorized

when bad doctors happen to good people…

I feel like most people with complicated chronic illnesses deserve honorary medical degrees. Every week I spend countless hours reading medical journals and researching different … Read More ›

Posted on September 4, 2016
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS, Uncategorized

dysautoFAQs…

I often receive email from people who read my blog. Some ask questions, some share their story, some just like to vent – all are … Read More ›

Posted on June 26, 2016
Chronic Illness, Dysautonomia, Health, MCAD, POTS, Uncategorized

just an update…

I feel I owe you all a follow up after my last few posts. After having a difficult time for a few weeks, I finally … Read More ›

Posted on June 11, 2016
Chronic Illness, Conditions and Diseases, POTS, Uncategorized

the pedal for POTS party…

A brother/sister duo have been bicycling across the United States to raise money and awareness for POTS. According to the Pedal for POTS website, Ari and Alix … Read More ›

Posted on May 19, 2016
Chronic Illness, Dysautonomia, POTS, Uncategorized

uncontrolled…

Anyone who has met me wouldn’t be surprised to hear that I think I’m a bit of a control freak. It probably then doesn’t come as … Read More ›

Posted on April 26, 2016
Dysautonomia, POTS, Uncategorized

POTS webinar…

Howdy! I just wanted to let you all know about an upcoming webinar featuring Dr. Grubb (who is like a rockstar in the POTS world) … Read More ›

Posted on February 15, 2016
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS, Uncategorized

resolutions…

Happy New Year! I’m pretty excited about this year. 2015 was the most stressful year of my life – partly for reasons I have already … Read More ›

Posted on January 5, 2016
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, MCAD, POTS, Uncategorized

invisible illness week: 30 things about me…

This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their … Read More ›

Posted on October 3, 2015
Chronic Illness, Dysautonomia, Health, POTS, Uncategorized

rollin in my 6-4…

You may remember from my last post that I purchased a new set of wheels for my birthday a few weeks ago. I had been … Read More ›

Posted on September 16, 2015
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS, Uncategorized

happy fricken birthday to me…

My birthday was a couple weeks ago, so while I’m appreciative, you can skip the obligatory “happy birthday” comments. Just send money instead. Each year … Read More ›

Posted on August 16, 2015

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