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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Chronic Illness, Medication

my cromolyn fiasco…

Fair warning: I am likely going to drop an expletive or two in this post, because I’m very annoyed. Current frustration level: F-bomb. For mast … Read More ›

Posted on August 12, 2017August 11, 2017
Chronic Illness

a love letter to my friends…

Growing up, most of my friends were boys. I was into riding bikes and playing video games, and most other girls were not. As I … Read More ›

Posted on August 9, 2017
Chronic Illness, Doctor Visit, Health, POTS

i need the D…

Friends, I need the D. You know how when you feel like you’re in a rut and you’re not feeling sexy, you know you just … Read More ›

Posted on July 23, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS

hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But … Read More ›

Posted on July 9, 2017September 1, 2018
Chronic Illness, POTS

POTS/ Ivabradine study…

Hi all, I thought I would share a research study that was sent to me from ResearchMatch.org, the website for the organization that provides information … Read More ›

Posted on June 23, 2017June 24, 2017
Chronic Illness, Exercise, Health

a dysautonomiac exercises at home…

Because I have dragged you all through numerous posts about exercise, like this and this, I kind of feel like you’re along for the entire … Read More ›

Posted on June 12, 2017June 13, 2017
Chronic Illness, Dysautonomia, POTS

POTS in the news…

For those of you that follow the latest research on postural orthostatic tachycardia syndrome (POTS) regularly, this is probably old news. But for those of … Read More ›

Posted on May 25, 2017May 26, 2017
Chronic Illness

pre-existing…

Hello. My name is Lindsay, and I’m a former Republican. (Hi, Lindsay!) It may not surprise you to hear that, as someone who holds an … Read More ›

Posted on May 18, 2017July 13, 2017
caregiver, Chronic Illness

the patient caregiver…

I have mentioned this before, but being a patient who is also a caregiver is one of the more capricious dichotomies of my life. I … Read More ›

Posted on May 4, 2017May 13, 2017
Chronic Illness

emotional intelligence 101…

My mom was in town last week. You may remember from previous posts that my mom was diagnosed with a degenerative brain disease in October, … Read More ›

Posted on April 15, 2017April 17, 2017

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