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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Chronic Illness

a dysautonomiac cancels her gym membership…

The title of this post is a long overdue follow up to my post, a dysautonomiac walks into a gym. In the near future, I … Read More ›

Posted on March 17, 2017March 17, 2019
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS

happy POTSiversary to me…

I’m going to tell you a story about the woman in this photo.     This was taken a little over six years ago. She … Read More ›

Posted on February 22, 2017
Chronic Illness

suicide survey…

Standing Up to POTS (an organization for which I serve on the Board) is partnering with counselors and suicide prevention specialists to tackle the issue … Read More ›

Posted on February 13, 2017
Chronic Illness, Conditions and Diseases, Health

stop comparing every illness to cancer…

I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I … Read More ›

Posted on January 25, 2017February 13, 2017
Chronic Illness, Conditions and Diseases, Health

administrative updates…

Hi friends, I’d like to tell you that the title for this post is some deep metaphor for the wisdom I’m about to bestow, but … Read More ›

Posted on January 23, 2017January 23, 2017
Conditions and Diseases, MCAD, POTS, Uncategorized

conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as … Read More ›

Posted on January 10, 2017January 28, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, MCAD, POTS, Uncategorized

conference recap…

I was really hoping to get this out to you all before the end of 2016, but I’m 23 hours late. I hope you’ll all … Read More ›

Posted on January 1, 2017January 30, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS, Uncategorized

(wo)man’s best friend…

One year ago today, my life changed. This handsome fella came into my life: Today is Fletcher’s one year adoption anniversary. I first came across … Read More ›

Posted on December 20, 2016
Chronic Illness, Uncategorized

chronically ill holiday guide…

Every year I post this guide to the holidays for loved ones of the chronically ill. Friends, I’d love to hear your suggestions/challenges for the … Read More ›

Posted on December 11, 2016
Chronic Illness, Uncategorized

autoimmune disease is a major health issue

Great post about autoimmune diseases (which may include POTS) from my blogging friend. Check it out: autoimmune disease is a major health issue Why aren’t more … Read More ›

Posted on December 5, 2016August 8, 2017

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