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priority eating of the handicapped…

priority eating of the handicapped…

Earlier this week I had an appointment with the California DMV to obtain a disabled parking card. I had considered getting one for a while but kept putting it off. Having a disabled parking placard, for me, signifies that I am in fact disabled, and that’s a reality I haven’t been ready to face. But heat exacerbates my symptoms, so summer has been tough. I decided to call my doctor and get his opinion. He recommended the disabled parking card,…

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changing perceptions…

changing perceptions…

Yesterday was the fourth anniversary of my twenty-ninth birthday. For those of you who hate math, that means I turned 33.  For four years now I’ve refused to officially turn 30, not because I’m afraid of getting older, but because I feel like I never had the opportunity to give a proper goodbye to my 20’s. Although I was not diagnosed with dysautonomia until last year, I started experiencing symptoms in 2009, just months before my 30th birthday.  I had…

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step by step…

step by step…

After last week’s post regarding what to say to a chronically ill loved one, I thought I’d share a personal experience to demonstrate the frustration of conversing with people who do not understand an illness. On a daily basis, I find myself faced with places where I need to ascend to a second or third floor, but there is no elevator. Stairs are not generally a friend to dysautonomiacs, but if it’s just one flight, I’m usually okay. However, I…

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Introductions

Introductions

Hello, and welcome to my blog Musings of a Dysautonomiac! I am Lindsay, your host and resident dysautonomiac. This is me: I suffer from postural orthostatic tachycardia syndrome (“POTS”), which is a form of dysautonomia. Sometimes, due to POTS, I look like this: At the top of this page, you will see a directory of pages of this blog, including a “Glossary”. If at any time you do not understand the meaning of a word I have included, you will…

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