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invisible…

invisible…

Today marks the end of Invisible Illness Week and, as you may remember, October is Dysautonomia Awareness month. In the past I have helped organize events and fundraisers during the month of October, but didn’t get around to it this year. I’m setting it as an intention for next year. If you’ll bear with me, I’d like to tell you a story that illustrates why dysautonomia and invisible illness awareness are important to me. As you know, I recently traveled…

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invisible illness week: 30 things about me…

invisible illness week: 30 things about me…

This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their caregivers. I encourage you to check it out. Invisible Illness Awareness Week also encourages bloggers to participate by blogging about the theme for the year, or posting this “30 Things About My Illness”. The theme this year is #invisiblefight, which I think is a wonderful theme, but which, for some reason, is leaving me speechless. Sure,…

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brain fair…

brain fair…

Last Saturday, March 16th, was the American Academy of Neurology Annual Conference and Brain Fair.  This year it was located here in southern California, so I volunteered to help out at the Dysautonomia International (DI) booth (DI is a wonderful organization that promotes . The Conference lasted all week with different speakers on important neurology topics.  However, the Brain Fair was a one day event open to the public. There was food, music, plenty of information and stations where visitors…

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