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Tag: Diagnosis

happy POTSiversary to me…

happy POTSiversary to me…

I’m going to tell you a story about the woman in this photo.     This was taken a little over six years ago. She woke up after a restless sleep, like every other night that year. After donning some yoga pants and a sweatshirt, throwing her hair in a messy ponytail, and staring at her makeup-less face in the mirror for a few minutes, she gazed┬ásilently out the window while her boyfriend drove her to the hospital. Her thoughts…

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further down the rabbit hole…

further down the rabbit hole…

It has been an interesting few weeks – the Cubs finally won the World Series, Donald Trump will be President, marijuana is now legal in California, and I have two “new diagnoses”, although I use those terms loosely, as one is not really new, and one is not really a diagnosis. For the one that is not actually a diagnosis”: My doctor’s assumption of being peri-menopausal was correct. What. the. f*ck. I’m in my mid (okay, late) 30’s, so this…

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in the beginning…

in the beginning…

Today is my POTSiversary. What is a “POTSiversary” you might ask? It’s the totally clever way of saying it’s my illness anniversary! Three years ago today I underwent a tilt table test and was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), a form of dysautonomia. Prior to that, I was diagnosed with ME/CFS and a mild case of gastroparesis. I still do not know what has caused my POTS. I don’t even know if something has to have caused it,…

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outside of a dog…

outside of a dog…

Ever since I was diagnosed with POTS in February, 2011, I have been trying to read as much about the condition as I can. Unfortunately, there isn’t much information available about POTS, and I have read all the books on POTS that I could find – all one of them. There are a few more resources on dysautonomia (all POTS is dysautonomia, but not all dysautonomia is POTS) and even more on chronic and invisible illnesses. In fact, I’m currently…

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