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conference videos…

conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as the recordings of the speakers were available. The videos are now up, organized by speaker and topic, at the Children’s Hospital of Orange County website here. Feel free to share that link with others who might be interested. If you watch any of the presentations, I’d be interested in hearing what you think! Come back…

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conference recap…

conference recap…

I was really hoping to get this out to you all before the end of 2016, but I’m 23 hours late. I hope you’ll all forgive me. [P.S. HAPPY NEW YEAR!] As you may remember, I attended the Connecting the Dots conference about POTS/MCAD/EDS in December and want to tell you a little about that experience. I believe the videos of the individual speakers at the conference will be made available early this year. I will post here once I…

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POTS mini conference…

POTS mini conference…

Great news! If any of you are located near southern California, I highly recommend you check this out! CHOC (Children’s Hospital of Orange County) is offering a great POTS conference on December 3-4, 2016 in Orange, California. The conference is $25.00 per person for patients/family members. There is also a conference for medical professionals that you can share with your doctor. The schedule includes speeches from many of the POTS superstars as well as a breakout session for teens so…

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POTS webinar…

POTS webinar…

Howdy! I just wanted to let you all know about an upcoming webinar featuring Dr. Grubb (who is like a rockstar in the POTS world) tomorrow evening. I believe the webinar is primarily about POTS with Ehlers-Danlos Syndrome (EDS), however, you may still find it interesting if you don’t have EDS. I don’t have EDS and still plan to listen in.  The details of the webinar are below: DATE: Tuesday, February 16, 2016 at 7:30-9:30pm, EDT TOPIC: Postural Orthostatic Tachycardia Syndrome…

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upcoming EDS & POTS webinar…

upcoming EDS & POTS webinar…

October is Dysautonomia Awareness Month! To commemorate the occasion, Dysautonomia International is co-hosting a free webinar in conjunction with the Ehlers-Danlos National Foundation. The webinar is on October 9th at 8:00pm – 10:00pm EST.  You can register for the webinar here. Both Dr. Peter Rowe and Dr. Satish Raj (who is like a Dysautonomia superstar) will speak during the webinar.  As I mentioned above, it’s free to all, whether you have EDS, POTS, or love someone who does! Note: I…

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