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Tag: fatigue

mutual assured destruction…

mutual assured destruction…

Lately I enjoy listening to podcasts on my way to and from work. It all started with the “Serial” podcast, but after I finished seasons 1 and 2, I found I missed having intellectual stimulation during my commute. Upon the recommendation from a friend, I discovered a few podcasts that I have come to love. One such podcast discusses short history topics. Recently I listened to an episode on mutual assured destruction – or M.A.D. – that got me thinking. Mutual…

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the honeymoon is over…

the honeymoon is over…

Aloha. I promise I will try not to be that person who goes to Hawaii once and says “Aloha” and “Mahalo” to everything. Mahalo. As you know, the BF (husband…whatevs) and I returned from our honeymoon on the island of Kauai. It was my first time to Hawaii and I was really looking forward to seeing the crystal blue portion of the Pacific Ocean (unlike the murky green portion we have going on over here), spending time with the BF, and…

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pressing the snooze button…

pressing the snooze button…

This post isn’t about catching a few extra zzzzzzz’s in the morning before it’s time to wake up.  In fact, the only alarms I use anymore are medication reminders. Sure, I love a dream-filled sleep as much as the next gal, although these days dreams of postural orthostatic tachycardia syndrome (POTS) have replaced my staple dreams of cute men and buckets of money. And my recurring nightmares where I’m back in high school and can’t remember which class is next, and…

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the medication dilemma…

the medication dilemma…

About a week ago, I stopped taking all my dysautonomia/ME/CFS medication.  I don’t exactly know why. One night before bed it was time to pop the pills, and I just decided I didn’t want to. And the next morning, it was the same thing. I didn’t discuss it with my doctor, I didn’t discuss it with my boyfriend….I didn’t discuss it with anyone. I just stopped. The first few days I experienced some minor withdrawals. I was nauseous, sweaty, and…

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another day, another medication…

another day, another medication…

Last week I had an appointment with my POTS doctor.  Many dysautonomiacs see a neurologist for help managing their condition, as dysautonomia is a dysfunction of the autonomic nervous system.  However, when I was first diagnosed I was referred to a cardiologist who has now proven to be the best doctor I have ever had. He is gaining a reputation as a dysautonomia specialist on the west coast, so I’m not about to trade him in! I have been experiencing…

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exercise (in)tolerant…

exercise (in)tolerant…

After my last two posts, you are no doubt now very familiar with my exercise plight.  In this post I will finally share my formulated plan to address my exercise intolerance, and perhaps begin to tolerate it. But first, because this post involves information that could be misinterpreted as medical advice, I must issue a disclaimer: The information in this post, including any information available through links, is provided for information purposes only and is not intended as medical advice….

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changing perceptions…

changing perceptions…

Yesterday was the fourth anniversary of my twenty-ninth birthday. For those of you who hate math, that means I turned 33.  For four years now I’ve refused to officially turn 30, not because I’m afraid of getting older, but because I feel like I never had the opportunity to give a proper goodbye to my 20’s. Although I was not diagnosed with dysautonomia until last year, I started experiencing symptoms in 2009, just months before my 30th birthday.  I had…

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