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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Category: Dysautonomia

Chronic Illness, Demo, Dysautonomia, MCAD, POTS

alone…

I have always loved the sound of nothing. The audible noiselessness of an empty room. Living in a house with three other adults and a … Read More ›

Posted on October 7, 2017November 22, 2017
chinese herbs
Chronic Illness, Dysautonomia, Health, POTS

acupuncture and other ‘alternatives’…

Just this past week, I received acupuncture, started taking Chinese medicine, and took a yoga class. You guys, I am holistic as f*ck. Acupuncture This … Read More ›

Posted on September 23, 2017November 22, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS

hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But … Read More ›

Posted on July 9, 2017September 1, 2018
Chronic Illness, Dysautonomia, POTS

POTS in the news…

For those of you that follow the latest research on postural orthostatic tachycardia syndrome (POTS) regularly, this is probably old news. But for those of … Read More ›

Posted on May 25, 2017May 26, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS

happy POTSiversary to me…

I’m going to tell you a story about the woman in this photo.     This was taken a little over six years ago. She … Read More ›

Posted on February 22, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, MCAD, POTS, Uncategorized

conference recap…

I was really hoping to get this out to you all before the end of 2016, but I’m 23 hours late. I hope you’ll all … Read More ›

Posted on January 1, 2017January 30, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS, Uncategorized

(wo)man’s best friend…

One year ago today, my life changed. This handsome fella came into my life: Today is Fletcher’s one year adoption anniversary. I first came across … Read More ›

Posted on December 20, 2016
Chronic Illness, Conditions and Diseases, Doctor Visit, Dysautonomia, Health, POTS, Uncategorized

when bad doctors happen to good people…

I feel like most people with complicated chronic illnesses deserve honorary medical degrees. Every week I spend countless hours reading medical journals and researching different … Read More ›

Posted on September 4, 2016
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS, Uncategorized

dysautoFAQs…

I often receive email from people who read my blog. Some ask questions, some share their story, some just like to vent – all are … Read More ›

Posted on June 26, 2016
Chronic Illness, Dysautonomia, Health, MCAD, POTS, Uncategorized

just an update…

I feel I owe you all a follow up after my last few posts. After having a difficult time for a few weeks, I finally … Read More ›

Posted on June 11, 2016

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