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Category: Dysautonomia

uncontrolled…

uncontrolled…

Anyone who has met me wouldn’t be surprised to hear that I think I’m a bit of a control freak. It probably then doesn’t come as a surprise to hear that I like having control over my body. Having postural orthostatic tachycardia syndrome (POTS) tends to throw the occasional wrench is my well-oiled wheel of bodily control. Unfortunately, as I recently discovered, so does stopping certain prescriptions. About ten months ago, I stopped taking birth control pills. For a control freak, this…

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POTS webinar…

POTS webinar…

Howdy! I just wanted to let you all know about an upcoming webinar featuring Dr. Grubb (who is like a rockstar in the POTS world) tomorrow evening. I believe the webinar is primarily about POTS with Ehlers-Danlos Syndrome (EDS), however, you may still find it interesting if you don’t have EDS. I don’t have EDS and still plan to listen in.  The details of the webinar are below: DATE: Tuesday, February 16, 2016 at 7:30-9:30pm, EDT TOPIC: Postural Orthostatic Tachycardia Syndrome…

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resolutions…

resolutions…

Happy New Year! I’m pretty excited about this year. 2015 was the most stressful year of my life – partly for reasons I have already shared with you like trying awful new medications, getting married, and the honeymoon – and for many reasons which I haven’t yet shared with you. I’m still searching for answers on a few things, and probably acceptance on a few others, and will explain it all to you in good time. In the meantime, I…

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invisible illness week: 30 things about me…

invisible illness week: 30 things about me…

This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their caregivers. I encourage you to check it out. Invisible Illness Awareness Week also encourages bloggers to participate by blogging about the theme for the year, or posting this “30 Things About My Illness”. The theme this year is #invisiblefight, which I think is a wonderful theme, but which, for some reason, is leaving me speechless. Sure,…

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rollin in my 6-4…

rollin in my 6-4…

You may remember from my last post that I purchased a new set of wheels for my birthday a few weeks ago. I had been dreading taking my shiny new ride out for a spin in public for reasons I understood but didn’t want to acknowledge. Is it vain to care what you look like pushing a walker, or is that just human nature? After a previous horrible DMV experience (really – are there any other kind?), I knew I wasn’t…

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happy fricken birthday to me…

happy fricken birthday to me…

My birthday was a couple weeks ago, so while I’m appreciative, you can skip the obligatory “happy birthday” comments. Just send money instead. Each year I like to buy myself a small gift for my birthday. I find it helps ease the pain of growing old. Past self-gifts have included little trinkets, a sweet treat, or – back in my younger “broke” days – the “expensive beer”, which typically meant anything other than Keystone Light. This year I thought I…

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the honeymoon is over…

the honeymoon is over…

Aloha. I promise I will try not to be that person who goes to Hawaii once and says “Aloha” and “Mahalo” to everything. Mahalo. As you know, the BF (husband…whatevs) and I returned from our honeymoon on the island of Kauai. It was my first time to Hawaii and I was really looking forward to seeing the crystal blue portion of the Pacific Ocean (unlike the murky green portion we have going on over here), spending time with the BF, and…

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so this is marriage…

so this is marriage…

Note: I am back from the honeymoon now, but actually wrote this post after the wedding, before the honeymoon. In the rush to get off to Hawaii, I forgot to post it. In the interest of not overwhelming you with a really long post, I decided to post this one now, in its original state, and follow it with a post about the honeymoon. – Linds —— Well, I did it. I got married! If you have been following this blog,…

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yep, i’m an idiot…

yep, i’m an idiot…

Remember how in my last post, I talked about trying a new medication (Florinef) with the hopes that it would help me make it through my wedding? And, remember how I said trying something new so close to the wedding might mean I’m really stupid?? God, I hate when I’m right. Day 1 of Florinef (or, rather, a tiny fraction of a pill): no problems. Day 2: one of the worst nights of my life. I woke up at 1:30am feeling…

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the winds of change…

the winds of change…

Just over five years ago, I took the California state bar exam. If you’re not familiar, the bar exam is the test you must take in order to become a licensed attorney. With three entire days of testing, it’s a rigorous exam, one which you have to spend months studying for if you have any hopes of passing. The two and a half months I spent studying for the test are a blur. On the first day of bar study…

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