Note: I am back from the honeymoon now, but actually wrote this post after the wedding, before the honeymoon. In the rush to get off to Hawaii, I forgot to post it. In the interest of not overwhelming you with a really long post, I decided to post this one now, in its original state, and follow it with a post about the honeymoon. – Linds
Well, I did it. I got married!
If you have been following this blog, you know I was quite concerned about how I was going to make it through a wedding. I would love to tell you that I woke up feeling fantastic that morning, but that would be a lie. The truth is, I felt awful that morning. Very bad headache, dizziness and I constantly felt like I needed to vomit. But, as the day went on, all of that was replaced with tiredness, which is much better (and certainly expected on a busy day!). The day was lovely – we had the perfect weather. And, I didn’t even faint, so I’m counting it as a win!
We opted to sit for part of the ceremony, instead of having to worry about if, and when, I should sit if I started to feel dizzy, and how to do it gracefully. We sat while my sister read a poem, which I think worked out really well because the focus was on her and off of us for that short time. Then we stood for the vows. The ceremony only lasted less than 10 minutes – so it was the perfect wedding for someone with POTS (and with lots of kids in attendance).
Prior to the wedding, I had an appointment with a mast cell activation (MCAD) specialist here (Dr. White, who authored this article on MCAD and POTS). He ordered the 24 hour urine test, and I didn’t want to do it the week of the wedding (because….how romantic), so I saved it for after. I didn’t want to give the BF any last incentives to run before the wedding, and I thought carrying around a big jug of urine for 24 hours might do the trick.
If you’re not familiar, the 24 hour urine test is exactly as it sounds – you collect all urine for a 24 hour period in a large jug. After the 24 hours are up, you return it to the lab for testing. The urine had to be kept cold so for 24 hours I either had to carry a cooler of urine with me, or not stray far from the refrigerator. I opted for the latter, as I haven’t yet figured out a tactful way to ask someone if I can store my gallon of pee in their fridge.
Sometimes being sick is just so….gross.
It should take a few weeks to get the results, which is why I wanted to do it now, because the BF (I know – I need to stop calling him that now) and I leave for Hawaii for our honeymoon tomorrow, and I’d like the lab to be processing the results while I’m gone. I would be excited about the trip, but in the past two weeks since the wedding, I really haven’t been feeling well. I’m so exhausted. I hope I’m not allergic to marriage.
It’s clear that I overdid it the weekend of the wedding, and it’s taking a while to recover. My blood pressure and heart rate are all over the place, and I’m back to not being able to stand for much longer than it takes to walk to the bathroom. I just wish I had more energy.
I’m glad we got married, but still wish we would have skipped the whole “wedding” thing and just went down to the county office. It makes me happy that our families had a great time, but I don’t think they get just how hard that was for me.
I went to the hospital for an IV yesterday, and I’m hoping that will help. It often takes a day or two to kick in, so hopefully that means I will be feeling awesome right as the plane lands. Sure, there are worse things than napping on a beach in Hawaii, but there are better things, too.
“love is a fragile word
in the air on the length we lay
no hands are half as gentle
or firm as they like to be
thank God you see me the way you do
strange as you are to me”
– Iron & Wine