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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Category: Chronic Illness

Chronic Illness

unseen…

Earlier this year, I wrote about a family reunion trip to Lake Tahoe and how I had to miss out on most of the activities … Read More ›

Posted on December 23, 2018December 23, 2018
Chronic Illness

saying goodbye to my grandmother…

My grandmother died last Friday. I have tried to think of a way to lead into that, instead of starting with that emotional bomb, but … Read More ›

Posted on November 18, 2018November 19, 2018
Chronic Illness

golden ticket…

Some days I miss my old life, where spontaneity reigned and I did’t have to over-analyze every. single. detail. of every. single. moment. When my … Read More ›

Posted on November 13, 2018
Chronic Illness

reunited…

I hated high school. Actually, that’s not true. I loved the first two years of high school. I was young, healthy, had a car, a … Read More ›

Posted on October 18, 2018
Chronic Illness

dysautonomia awareness month pt 2…

As I mentioned in a previous post, October is Dysautonomia Awareness month! Turquoise is the official color of dysaytonomia, and last weekend I had the … Read More ›

Posted on October 14, 2018October 14, 2018
Chronic Illness

dysautonomia awareness month…

October is Dysautonomia Awareness Month! As you probably know by now, dysautonomia means a dysfunction of your autonomic nervous system (ANS). The ANS controls all … Read More ›

Posted on October 2, 2018
Chronic Illness

vacation all i ever wanted…

Vacation All I ever wanted Vacation Had to get away Vacation Meant to be spent alone. – The GoGos My family planned a reunion in … Read More ›

Posted on September 20, 2018September 20, 2018
Chronic Illness, MCAD, POTS

surviving the summer…

I grew up in the desert, where triple digits during the summer are not only the norm, they’re the rule. Summers were long and brutal, … Read More ›

Posted on September 9, 2018September 9, 2018
Chronic Illness, Doctor Visit, POTS

hypermo-what…

When I was younger, back before everyone’s dog was doing yoga, I was able to put my legs behind my head. As in, if sitting … Read More ›

Posted on August 26, 2018
Chronic Illness

TSA Precheck and Chronic Illness…

When I was 10 years old, my older sister and I went on our first airline flight without my parents. We were on our way … Read More ›

Posted on July 29, 2018

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