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MUSINGS OF A DYSAUTONOMIAC

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Category: Chronic Illness

Chronic Illness

in need of hosting recommendations…

Hey friends, I have become less than satisfied with my web hosting company as of late. Every 3-4 weeks I have been having technical issues … Read More ›

Posted on July 22, 2018
Chronic Illness

what you should know when a loved one is dying…

Friends, I have to extend my deep and heartfelt thanks to all of you for your comments, texts, emails and phone calls after my last … Read More ›

Posted on July 14, 2018July 14, 2018
Chronic Illness

gratitude…

If you haven’t read the last post, this is basically a continuation of that one. So for reference and chronology, you may want to start … Read More ›

Posted on June 26, 2018June 27, 2018
Chronic Illness

mercy…

My mother-in-law and I have a complicated relationship. I watch enough stand-up comedy clips and have heard enough humorous quips from friends to know we’re … Read More ›

Posted on June 18, 2018
Chronic Illness

what you should know about participating in a clinical trial…

In the two weeks since the end of the ivabradine clinical trial, I have had a lot of time to reflect on the experience. Although the … Read More ›

Posted on June 10, 2018
Chronic Illness

research update #3: ivabradine for POTS…

Well, this is my third and final post about the clinical trial studying the effects of ivabradine (brand name: Corlanor) on postural orthostatic tachycardia syndrome … Read More ›

Posted on June 3, 2018March 17, 2019
Chronic Illness

why i am an awful person…

Sometimes I feel a little angry at the world. I first began to feel a little enraged when I was diagnosed with postural orthostatic tachycardia … Read More ›

Posted on May 28, 2018
Chronic Illness

five on friday…

I haven’t posted a five on Friday in a while. In fact, I have only ever posted one, so I suppose there is no anticipated … Read More ›

Posted on May 4, 2018May 5, 2018
Chronic Illness, Research study

research update #2…

Since my last update on the research study I am participating in that tests the effects of ivabradine (brand name: Corlanor) on hyperadrenergic POTS, I … Read More ›

Posted on April 28, 2018
Chronic Illness

why the chronically ill make good friends…

I have never been great at making friends. When I was younger, part of that stemmed from self-doubt, because I didn’t have a lot of … Read More ›

Posted on April 21, 2018September 1, 2018

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