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MUSINGS OF A DYSAUTONOMIAC

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Category: POTS

Chronic Illness, MCAD, POTS

surviving the summer…

I grew up in the desert, where triple digits during the summer are not only the norm, they’re the rule. Summers were long and brutal, … Read More ›

Posted on September 9, 2018September 9, 2018
Chronic Illness, Doctor Visit, POTS

hypermo-what…

When I was younger, back before everyone’s dog was doing yoga, I was able to put my legs behind my head. As in, if sitting … Read More ›

Posted on August 26, 2018
Chronic Illness, POTS

hyper-POTS…

Edit: I have been trying to read as much as I can about hyper-POTS, and feel I should update this post because it isn’t entirely … Read More ›

Posted on March 25, 2018April 4, 2018
Chronic Illness, POTS

tilt table test…

A little over seven years ago I was diagnosed with postural orthostatic tachycardia syndrome (POTS) via tilt table test. Yesterday I had my second tilt … Read More ›

Posted on March 15, 2018
Medication, POTS

POTS/ivabradine study, take two…

[Update: Even though below I said I’d rather lick my dog’s feet than take ivabradine again, I called the researcher and volunteered to participate. She … Read More ›

Posted on January 23, 2018January 25, 2018
Chronic Illness, Medication, POTS

options…

I have been on a beta blocker since I was diagnosed with postural orthostatic tachycardia syndrome (POTS) in 2011. Initially, I was prescribed 25mg of … Read More ›

Posted on October 16, 2017
Chronic Illness, Demo, Dysautonomia, MCAD, POTS

alone…

I have always loved the sound of nothing. The audible noiselessness of an empty room. Living in a house with three other adults and a … Read More ›

Posted on October 7, 2017November 22, 2017
chinese herbs
Chronic Illness, Dysautonomia, Health, POTS

acupuncture and other ‘alternatives’…

Just this past week, I received acupuncture, started taking Chinese medicine, and took a yoga class. You guys, I am holistic as f*ck. Acupuncture This … Read More ›

Posted on September 23, 2017November 22, 2017
Chronic Illness, Exercise, POTS

a notice for my soCal friends…

A notice was posted at my cardiologist’s office that Scripps La Jolla offers Yoga for Dysautonomia every Wednesday evening at 6:15p.m. at the Schaetzel Center … Read More ›

Posted on August 24, 2017
Chronic Illness, Doctor Visit, Health, POTS

i need the D…

Friends, I need the D. You know how when you feel like you’re in a rut and you’re not feeling sexy, you know you just … Read More ›

Posted on July 23, 2017

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