Browsed by
Category: Conditions and Diseases

when bad doctors happen to good people…

when bad doctors happen to good people…

I feel like most people with complicated chronic illnesses deserve honorary medical degrees. Every week I spend countless hours reading medical journals and researching different illnesses. The number of doctors I have had to educate on my condition is astounding. I actually left my old PCP because he had never heard of postural orthostatic tachycardia syndrome (POTS), and didn’t seem to have any interest in learning about it. I see a cardiologist for my POTS, but its important that the…

Read More Read More

understanding invisible illness…

understanding invisible illness…

Like usual, I’m behind on my blog posts. I have about 5 drafts on different topics, but have yet to find the time to finish any of them. As you know, lots going on around here lately with my mom participating in the PSP study, and my blog is suffering. So, I was pleased when Victoria contacted me and asked if I would be interested in posting some of her content on my blog. Victoria owns the website Burning Nights about…

Read More Read More

dysautoFAQs…

dysautoFAQs…

I often receive email from people who read my blog. Some ask questions, some share their story, some just like to vent – all are welcome. I have even made a few email/texting friends that way, which has been a huge unexpected bonus to writing this blog. You are welcome to email me anytime at Lindsay@Dysautonomiac.com. I try to answer every email, so if you don’t hear back from me, resend it. I’m not an expert on dysautonomia/postural orthostatic tachycardia…

Read More Read More

the pedal for POTS party…

the pedal for POTS party…

A brother/sister duo have been bicycling across the United States to raise money and awareness for POTS. According to the Pedal for POTS website, Ari and Alix have been riding their bicycles “from Florida to California for POTS, an often debilitating neurological disorder resulting in, among other things, reduced blood flow to the brain, rapid heart rate and chronic fatigue. POTS will eventually become a household name, and this bicycle tour will accelerate that process.” Their ride concludes this Saturday, May 21st, 2016…

Read More Read More

baby got back: an MRI guide…

baby got back: an MRI guide…

I like big butts and I cannot lie. That’s not just a line from a catchy 90’s rap tune, I actually DO like big butts. Baby butts, dog butts, adult butts, they’re all fabulous. In fact, I spent many nights wishing upon a star as a little girl that I would be blessed in the gluteal region. I’m not exactly a curvaceous woman. My lady assets stopped growing prematurely, so I have always been envious of those ladies with very round…

Read More Read More

resolutions…

resolutions…

Happy New Year! I’m pretty excited about this year. 2015 was the most stressful year of my life – partly for reasons I have already shared with you like trying awful new medications, getting married, and the honeymoon – and for many reasons which I haven’t yet shared with you. I’m still searching for answers on a few things, and probably acceptance on a few others, and will explain it all to you in good time. In the meantime, I…

Read More Read More

die(t)ing to fit in…

die(t)ing to fit in…

As usual, I am behind on my posts. We just moved into a new house, but more on that later. Although my tests for mast cell activation disorder (MCAD) came back normal, my POTS doctor still thinks I might have MCAD because (1) I do exhibit typical histamine responses which (2) respond well to the cromolyn, H1 & H2 blocker treatment. If it wasn’t for cromolyn, I would never eat. Despite responding well to MCAD treatment, my blood pressure has…

Read More Read More

invisible illness week: 30 things about me…

invisible illness week: 30 things about me…

This week is National Invisible Chronic Illness Awareness Week! In observance, invisibleillnessweek.com offers some great articles and podcasts for those with chronic illnesses and their caregivers. I encourage you to check it out. Invisible Illness Awareness Week also encourages bloggers to participate by blogging about the theme for the year, or posting this “30 Things About My Illness”. The theme this year is #invisiblefight, which I think is a wonderful theme, but which, for some reason, is leaving me speechless. Sure,…

Read More Read More

happy fricken birthday to me…

happy fricken birthday to me…

My birthday was a couple weeks ago, so while I’m appreciative, you can skip the obligatory “happy birthday” comments. Just send money instead. Each year I like to buy myself a small gift for my birthday. I find it helps ease the pain of growing old. Past self-gifts have included little trinkets, a sweet treat, or – back in my younger “broke” days – the “expensive beer”, which typically meant anything other than Keystone Light. This year I thought I…

Read More Read More

these are not the results you are looking for…

these are not the results you are looking for…

By the title of this post I do not mean to suggest I received bad news in the form of test results. I was really just looking for an excuse to make a Star Wars reference. The results from my mast cell activation disorder (MCAD) test are in. The results actually came in a couple weeks go, but I have been too tired to post them. You may remember that this is the test for which I had to carry…

Read More Read More

%d bloggers like this: