The results from my mast cell activation disorder (MCAD) test are in. The results actually came in a couple weeks go, but I have been too tired to post them. You may remember that this is the test for which I had to carry around a big jug of pee for 24 hours. A big cold jug of pee.
All of the results are normal, except that apparently I urinate quite a bit more than the average person. For some odd reason, I take that as a compliment. I may not be good at a lot of things, but I’m excellent at going to the bathroom.
The urinalysis consisted of the following tests:
All results were normal – nothing even close to borderline high. So, it looks like I don’t have MCAD. I have to admit, I’m very surprised by the results. With the flushing, sneezing, and rashes, I thought MCAD was a possibility, but I guess I just have bad allergies.
This is the contradiction of the sick: we fear positive test results, but hope for an explanation to our misery. I was simultaneously relieved and heartbroken when I tested positive for POTS. It sounds ridiculous to say I was hoping the MCAD test would be positive. No one ever wants an illness, and to say that I do undermines all of the hardships MCAD inflicts on the lives of those who have it. But I do want to know what caused my postural orthostatic tachycardia syndrome (POTS). I want a justification, and an end to the arduous search.
I believe POTS is caused by something – I don’t understand how my autonomic nervous system can just stop functioning correctly one day. There are others, including my POTS doctor, that disagree and don’t think POTS must have a cause. It has become clear that, while my POTS may improve over the years, it will never be resolved until I treat the underlying issue, whatever that is.
MCAD isn’t the cause, so I will continue searching. Some possible causes of POTS include:
Ehlers-Danlos Syndrome MCAD surgery pregnancy accident or other trauma
- autoimmune disease
- Autonomic Ganglionopathy
- Chiari Malformation
Deconditioning Diabetes and pre-diabetes
- Epstein Barr Virus,
- Lyme Disease
- Multiple Sclerosis
- Mitochondrial Diseases
Toxicity from alcoholism, chemotherapy and heavy metal poisoning.
After being diagnosed with POTS for over 4 years, I have only been able to cross a few possible causes off the list, but I have finally reached a point where I
want need to know why I have it. Thus begins the journey to discover the cause of my POTS. I expect it will be a long and expensive one. As my doctor doesn’t necessarily think there is a cause, I will be searching alone. But hopefully the rewards will be great.
“What we seek is some kind of compensation for what we put up with.” – Haruki Murakami
Readers: Have you found the cause of whatever illness you have? How long did it take?
Smell ya later.