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Tag: autonomic nervous system

rollin in my 6-4…

rollin in my 6-4…

You may remember from my last post that I purchased a new set of wheels for my birthday a few weeks ago. I had been dreading taking my shiny new ride out for a spin in public for reasons I understood but didn’t want to acknowledge. Is it vain to care what you look like pushing a walker, or is that just human nature? After a previous horrible DMV experience (really – are there any other kind?), I knew I wasn’t…

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the healthy gut…

the healthy gut…

Occasionally, the BF and I like to go out for “date night”.  Date night is like every other night, except that we put on something besides pajamas for two hours, we use a napkin to wipe our face, instead of our sleeves, and we practice appropriate conversation topics to have in public, which we have learned does NOT include conversations about butts or dog wieners. On Saturday, the BF and I went out for such a date at one of our…

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another day, another medication…

another day, another medication…

Last week I had an appointment with my POTS doctor.  Many dysautonomiacs see a neurologist for help managing their condition, as dysautonomia is a dysfunction of the autonomic nervous system.  However, when I was first diagnosed I was referred to a cardiologist who has now proven to be the best doctor I have ever had. He is gaining a reputation as a dysautonomia specialist on the west coast, so I’m not about to trade him in! I have been experiencing…

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allergic to POTS…

allergic to POTS…

One of the frustrations of having an illness that affects the autonomic nervous system is the variety of symptoms it causes. The autonomic nervous system is responsible for digestion, heart rate, blood pressure, body temperature,  respiration and many other automatic bodily functions. When I develop an increase in symptoms, or new symptoms, it is difficult to tell if my dysautonomia is acting up, or if there is something else going on. As a child, I had horrible seasonal allergies, usually…

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Global Dysautonomia Awareness…

Global Dysautonomia Awareness…

Hello and Happy Autumn to you all! October is Global Dysautonomia Awareness month! Don’t worry if you didn’t know – this is actually the first ever Global Dysautonomia Awareness month!!  Dysautonomia International, the new worldwide organization whose goal is to raise funds for dysautonomiac research, raise awareness of dysautonomia, and to empower patients and caregivers recently launched its website. Until now, there have only been individual localized groups, so a global organization is a huge step forward.  Check out their…

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changing perceptions…

changing perceptions…

Yesterday was the fourth anniversary of my twenty-ninth birthday. For those of you who hate math, that means I turned 33.  For four years now I’ve refused to officially turn 30, not because I’m afraid of getting older, but because I feel like I never had the opportunity to give a proper goodbye to my 20’s. Although I was not diagnosed with dysautonomia until last year, I started experiencing symptoms in 2009, just months before my 30th birthday.  I had…

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Introductions

Introductions

Hello, and welcome to my blog Musings of a Dysautonomiac! I am Lindsay, your host and resident dysautonomiac. This is me: I suffer from postural orthostatic tachycardia syndrome (“POTS”), which is a form of dysautonomia. Sometimes, due to POTS, I look like this: At the top of this page, you will see a directory of pages of this blog, including a “Glossary”. If at any time you do not understand the meaning of a word I have included, you will…

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