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Tag: cromolyn

the finality of the fiasco…

the finality of the fiasco…

Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday??   Cromolyn sodium oral concentrate! FIVE boxes of cromolyn sodium oral concentrate! 11.2 POUNDS of cromolyn sodium oral concentrate! That’s 5 KILOGRAMS OF CROMOLYN SODIUM ORAL CONCENTRATE!! Yes, I actually balanced five boxes of cromolyn on my bathroom scale. I have a lot of free time. I can’t even hazard a guess as to how long 11.2 lbs of cromolyn will last. Hopefully…

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my cromolyn fiasco…

my cromolyn fiasco…

Fair warning: I am likely going to drop an expletive or two in this post, because I’m very annoyed. Current frustration level: F-bomb. For mast cell activation disorder (MCAD), I take a medication called cromolyn. Actually, if you want to get technical, its “cromolyn sodium oral concentrate”. It consists of these little tubes filled with clear medication that come latched together in a discreet package. Discreet shiny, glittery, crinkly “let me see how many people I can make stare while…

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die(t)ing to fit in…

die(t)ing to fit in…

As usual, I am behind on my posts. We just moved into a new house, but more on that later. Although my tests for mast cell activation disorder (MCAD) came back normal, my POTS doctor still thinks I might have MCAD because (1) I do exhibit typical histamine responses which (2) respond well to the cromolyn, H1 & H2 blocker treatment. If it wasn’t for cromolyn, I would never eat. Despite responding well to MCAD treatment, my blood pressure has…

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the winds of change…

the winds of change…

Just over five years ago, I took the California state bar exam. If you’re not familiar, the bar exam is the test you must take in order to become a licensed attorney. With three entire days of testing, it’s a rigorous exam, one which you have to spend months studying for if you have any hopes of passing. The two and a half months I spent studying for the test are a blur. On the first day of bar study…

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no more pills…

no more pills…

Everyone loves babies, right? They’re cute and cuddly and they have that oddly appealing baby smell (not to be confused with the completely revolting dirty diaper smell) that makes your heart expand and your uterus contract.  As they get older, we can dress them up in adorable outfits, mold them into upstanding humans and teach them the meaning of life. As long as it isn’t any more difficult than my recent week-long dogsitting experience, I’m totally in.      …

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medication update…

medication update…

As you know from a previous post, I started cromolyn about six weeks ago. I know a few readers had recently started or were about to start cromolyn as well, and I wanted to provide an update and hear about your experiences. At first I thought cromolyn may have been having a huge impact on my symptoms.  Unfortunately, it’s not the wonder drug I hoped it would be, but I am still finding some benefits in it. Although, in cromolyn’s…

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and so it begins…

and so it begins…

As you may remember, I recently had an appointment with my postural orthostatic tachycardia syndrome (POTS) doctor regarding changes in medication.  In my last post I talked about the new medication I’m on, cromolyn.  I’ll provide a cromolyn update in a week or two – I want to give it a little more time before I make any official comments – but so far it isn’t proving to be the miracle drug I was hoping for. At that appointment, one…

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cromolyn…

cromolyn…

I think of trying new medications as the equivalent of going on a blind first date – it could end up being pretty cool, but it might also be awful and make you want to vomit. I had an appointment with my cardiologist. We discussed many things, including stopping all medication (more on that next post), and also adding a new medication – essentially the kind of contradictory discussion only a doctor and lawyer can have. The medication we added…

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