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Tag: Mast cell

conference videos…

conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as the recordings of the speakers were available. The videos are now up, organized by speaker and topic, at the Children’s Hospital of Orange County website here. Feel free to share that link with others who might be interested. If you watch any of the presentations, I’d be interested in hearing what you think! Come back…

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conference recap…

conference recap…

I was really hoping to get this out to you all before the end of 2016, but I’m 23 hours late. I hope you’ll all forgive me. [P.S. HAPPY NEW YEAR!] As you may remember, I attended the Connecting the Dots conference about POTS/MCAD/EDS in December and want to tell you a little about that experience. I believe the videos of the individual speakers at the conference will be made available early this year. I will post here once I…

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POTS mini conference…

POTS mini conference…

Great news! If any of you are located near southern California, I highly recommend you check this out! CHOC (Children’s Hospital of Orange County) is offering a great POTS conference on December 3-4, 2016 in Orange, California. The conference is $25.00 per person for patients/family members. There is also a conference for medical professionals that you can share with your doctor. The schedule includes speeches from many of the POTS superstars as well as a breakout session for teens so…

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die(t)ing to fit in…

die(t)ing to fit in…

As usual, I am behind on my posts. We just moved into a new house, but more on that later. Although my tests for mast cell activation disorder (MCAD) came back normal, my POTS doctor still thinks I might have MCAD because (1) I do exhibit typical histamine responses which (2) respond well to the cromolyn, H1 & H2 blocker treatment. If it wasn’t for cromolyn, I would never eat. Despite responding well to MCAD treatment, my blood pressure has…

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these are not the results you are looking for…

these are not the results you are looking for…

By the title of this post I do not mean to suggest I received bad news in the form of test results. I was really just looking for an excuse to make a Star Wars reference. The results from my mast cell activation disorder (MCAD) test are in. The results actually came in a couple weeks go, but I have been too tired to post them. You may remember that this is the test for which I had to carry…

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so this is marriage…

so this is marriage…

Note: I am back from the honeymoon now, but actually wrote this post after the wedding, before the honeymoon. In the rush to get off to Hawaii, I forgot to post it. In the interest of not overwhelming you with a really long post, I decided to post this one now, in its original state, and follow it with a post about the honeymoon. – Linds —— Well, I did it. I got married! If you have been following this blog,…

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the winds of change…

the winds of change…

Just over five years ago, I took the California state bar exam. If you’re not familiar, the bar exam is the test you must take in order to become a licensed attorney. With three entire days of testing, it’s a rigorous exam, one which you have to spend months studying for if you have any hopes of passing. The two and a half months I spent studying for the test are a blur. On the first day of bar study…

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lost in translation…

lost in translation…

I’d like to think I’m somewhat of an expert at doctor’s appointments.  I rarely went to the doctor as a kid, so when I became chronically ill a few years ago, doctor visits were foreign territory. However, regular appointments (including a week of multiple daily tests and appointments at Mayo) over the years has turned me into a pro. After so many visits, each sterile, vacant waiting room starts to look the same. Sure, seeing what Goofus and Gallant are up…

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cromolyn…

cromolyn…

I think of trying new medications as the equivalent of going on a blind first date – it could end up being pretty cool, but it might also be awful and make you want to vomit. I had an appointment with my cardiologist. We discussed many things, including stopping all medication (more on that next post), and also adding a new medication – essentially the kind of contradictory discussion only a doctor and lawyer can have. The medication we added…

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