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MUSINGS OF A DYSAUTONOMIAC

living life one pill box compartment at a time

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Category: Chronic Illness

Chronic Illness, Demo

invisible…

Today marks the end of Invisible Illness Week and, as you may remember, October is Dysautonomia Awareness month. In the past I have helped organize … Read More ›

Posted on October 22, 2017November 22, 2017
Chronic Illness, Medication, POTS

options…

I have been on a beta blocker since I was diagnosed with postural orthostatic tachycardia syndrome (POTS) in 2011. Initially, I was prescribed 25mg of … Read More ›

Posted on October 16, 2017
Chronic Illness, Demo, Dysautonomia, MCAD, POTS

alone…

I have always loved the sound of nothing. The audible noiselessness of an empty room. Living in a house with three other adults and a … Read More ›

Posted on October 7, 2017November 22, 2017
chinese herbs
Chronic Illness, Dysautonomia, Health, POTS

acupuncture and other ‘alternatives’…

Just this past week, I received acupuncture, started taking Chinese medicine, and took a yoga class. You guys, I am holistic as f*ck. Acupuncture This … Read More ›

Posted on September 23, 2017November 22, 2017
Chronic Illness

exit interview…

If you have followed this blog for a while, you know that my mom and I are study participants in a clinical trial for a … Read More ›

Posted on September 1, 2017
Chronic Illness, Exercise, POTS

a notice for my soCal friends…

A notice was posted at my cardiologist’s office that Scripps La Jolla offers Yoga for Dysautonomia every Wednesday evening at 6:15p.m. at the Schaetzel Center … Read More ›

Posted on August 24, 2017
Chronic Illness, Conditions and Diseases, MCAD, Medication

the finality of the fiasco…

Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday??   Cromolyn sodium oral concentrate! FIVE boxes of … Read More ›

Posted on August 20, 2017August 21, 2017
Chronic Illness

WEGO health awards…

Hey friends, Every year WEGO Health hosts its WEGO Health Awards, where patient advocates are nominated for different awards. This year, I have been nominated … Read More ›

Posted on August 16, 2017
Chronic Illness, Medication

my cromolyn fiasco…

Fair warning: I am likely going to drop an expletive or two in this post, because I’m very annoyed. Current frustration level: F-bomb. For mast … Read More ›

Posted on August 12, 2017August 11, 2017
Chronic Illness

a love letter to my friends…

Growing up, most of my friends were boys. I was into riding bikes and playing video games, and most other girls were not. As I … Read More ›

Posted on August 9, 2017

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