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MUSINGS OF A DYSAUTONOMIAC

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Category: Conditions and Diseases

Chronic Illness, Conditions and Diseases, MCAD, Medication

the finality of the fiasco…

Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday??   Cromolyn sodium oral concentrate! FIVE boxes of … Read More ›

Posted on August 20, 2017August 21, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS

hair loss and chronic illness…

I’d love to tell you that before developing postural orthostatic tachycardia syndrome (POTS) and mast cell activation disorder (MCAD), I had silky, lustrous locks. But … Read More ›

Posted on July 9, 2017September 1, 2018
Chronic Illness, Conditions and Diseases, Dysautonomia, Health, POTS

happy POTSiversary to me…

I’m going to tell you a story about the woman in this photo.     This was taken a little over six years ago. She … Read More ›

Posted on February 22, 2017
Chronic Illness, Conditions and Diseases, Health

stop comparing every illness to cancer…

I expect this post will be wildly unpopular, but I am going to say it anyway. Stop comparing every illness to cancer. The day I … Read More ›

Posted on January 25, 2017February 13, 2017
Chronic Illness, Conditions and Diseases, Health

administrative updates…

Hi friends, I’d like to tell you that the title for this post is some deep metaphor for the wisdom I’m about to bestow, but … Read More ›

Posted on January 23, 2017January 23, 2017
Conditions and Diseases, MCAD, POTS, Uncategorized

conference videos…

Hi friends! In my previous post about the POTS/MCAD/EDS conference I went to in December, I promised I would let you know as soon as … Read More ›

Posted on January 10, 2017January 28, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, MCAD, POTS, Uncategorized

conference recap…

I was really hoping to get this out to you all before the end of 2016, but I’m 23 hours late. I hope you’ll all … Read More ›

Posted on January 1, 2017January 30, 2017
Chronic Illness, Conditions and Diseases, Dysautonomia, POTS, Uncategorized

(wo)man’s best friend…

One year ago today, my life changed. This handsome fella came into my life: Today is Fletcher’s one year adoption anniversary. I first came across … Read More ›

Posted on December 20, 2016
Chronic Illness, Conditions and Diseases, Health, Uncategorized

further down the rabbit hole…

It has been an interesting few weeks – the Cubs finally won the World Series, Donald Trump will be President, marijuana is now legal in … Read More ›

Posted on November 13, 2016
Chronic Illness, Conditions and Diseases, Uncategorized

POTS mini conference…

Great news! If any of you are located near southern California, I highly recommend you check this out! CHOC (Children’s Hospital of Orange County) is … Read More ›

Posted on October 23, 2016

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