A couple weeks ago, I may have had a mid-life crisis and had this done: It is my first tattoo, and I am entirely too … Read More ›
In this post, I’m actually going to talk about an illness I don’t have: myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Prior to my postural orthostatic tachycardia … Read More ›
Today marks the end of Invisible Illness Week and, as you may remember, October is Dysautonomia Awareness month. In the past I have helped organize … Read More ›
I have been on a beta blocker since I was diagnosed with postural orthostatic tachycardia syndrome (POTS) in 2011. Initially, I was prescribed 25mg of … Read More ›
I have always loved the sound of nothing. The audible noiselessness of an empty room. Living in a house with three other adults and a … Read More ›
Just this past week, I received acupuncture, started taking Chinese medicine, and took a yoga class. You guys, I am holistic as f*ck. Acupuncture This … Read More ›
If you have followed this blog for a while, you know that my mom and I are study participants in a clinical trial for a … Read More ›
A notice was posted at my cardiologist’s office that Scripps La Jolla offers Yoga for Dysautonomia every Wednesday evening at 6:15p.m. at the Schaetzel Center … Read More ›
Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday?? Cromolyn sodium oral concentrate! FIVE boxes of … Read More ›
Hey friends, Every year WEGO Health hosts its WEGO Health Awards, where patient advocates are nominated for different awards. This year, I have been nominated … Read More ›