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Tag: mast cell activation disorder

the finality of the fiasco…

the finality of the fiasco…

Oh my God, you guys. Guess what was waiting for me when I arrived home on Thursday??   Cromolyn sodium oral concentrate! FIVE boxes of cromolyn sodium oral concentrate! 11.2 POUNDS of cromolyn sodium oral concentrate! That’s 5 KILOGRAMS OF CROMOLYN SODIUM ORAL CONCENTRATE!! Yes, I actually balanced five boxes of cromolyn on my bathroom scale. I have a lot of free time. I can’t even hazard a guess as to how long 11.2 lbs of cromolyn will last. Hopefully…

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my cromolyn fiasco…

my cromolyn fiasco…

Fair warning: I am likely going to drop an expletive or two in this post, because I’m very annoyed. Current frustration level: F-bomb. For mast cell activation disorder (MCAD), I take a medication called cromolyn. Actually, if you want to get technical, its “cromolyn sodium oral concentrate”. It consists of these little tubes filled with clear medication that come latched together in a discreet package. Discreet shiny, glittery, crinkly “let me see how many people I can make stare while…

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i need the D…

i need the D…

Friends, I need the D. You know how when you feel like you’re in a rut and you’re not feeling sexy, you know you just need to get some D? Late at night, when you first wake up…it doesn’t matter when you get it. You even consider getting some D outside in broad daylight. Sometimes you know you need it so bad, you’re even willing to pay for the big D. That’s soooo me right now. I’m dying for some…

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these are not the results you are looking for…

these are not the results you are looking for…

By the title of this post I do not mean to suggest I received bad news in the form of test results. I was really just looking for an excuse to make a Star Wars reference. The results from my mast cell activation disorder (MCAD) test are in. The results actually came in a couple weeks go, but I have been too tired to post them. You may remember that this is the test for which I had to carry…

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cromolyn…

cromolyn…

I think of trying new medications as the equivalent of going on a blind first date – it could end up being pretty cool, but it might also be awful and make you want to vomit. I had an appointment with my cardiologist. We discussed many things, including stopping all medication (more on that next post), and also adding a new medication – essentially the kind of contradictory discussion only a doctor and lawyer can have. The medication we added…

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